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Jacana 5's Plight Highlights Wider Issue

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Jacana 5's Plight Highlights Wider Issue

Barbara Douglass has paused to collect her thoughts so she can sum up the difficulties facing her severely brain-damaged grandson, Ryan, and his family as they try to secure him disability support funding and somewhere to live.


"A lot of people get worn down by it," the 71-year-old says finally. "Tell you what - there's worse things than death and that's the perpetual grief for families."

 

She's not saying, you understand, that it would be better if her beloved Ryan had died when his car hit a power pole more than four years ago, or that she would rather be dead than continue to play her role in the family's watchful and loving guardianship of him.

 

It's just that, for all of them, being stuck in an unsatisfying, unedifying, frustrating and upsetting limbo where none of them - Ryan, Barbara, Deb, who is Ryan's mother, his father, siblings, all of them - can move an inch and certainly not forward, is like a kind of death.

 

Barb continues. "On the one hand, I think to myself we're lucky Ryan's not in a nursing home.

 

"What were we told?" she looks inquiringly over at daughter-in-law Deb. "That there were thousands of these young guys waiting for a bed in the Jacana Acquired Brain Injury Centre when we got in?

 

References and further information

The original article was produced by The Courier Mail.

 

For the rest of the article, visit the Courier Mail website.

http://www.couriermail.com.au/ipad/jacana-5s-plight-highlights-wider-issue/story-fn6ck45n-1226326098939

 

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