As individuals navigate the complex landscape that is recovering from a brain injury, they often find themselves in need of specific information and services to better understand and manage the cognitive and physical impacts.
During the 22-23 FY, Synapse received enquiries on the following topics from people living with a brain injury, carers, advocates, support workers, and family members.
- 34% Brain Injury information & referral
- 22% Advocacy and NDIS appeals
- 11% Ageing support
- 4% Peer support
- 8% Support coordination
- 21% Other
In this article, we will explore all these areas and what we’ve found individuals are looking for from each to get the right level of support and information.
Information about brain injury & referrals
It’s common for people to want to understand the extent of their brain injury, potential complications, and long-term effects. Many have questions about how the area of their brain injury will affect their day-to-day life, what the recovery process looks like, and the role of different medical professionals in their care. Our team provide access to clear, concise, and accurate information through our toll free informational and referral line 1800 673 074. Having the right information is essential to making informed decisions about a treatment and recovery plan.
Advocacy & the NDIS
Brain injuries can have a substantial financial impact, from medical expenses to potential loss of income. Accessing the National Disability Insurance Scheme (NDIS) can help people navigate living expenses if they are unable to return to work because of their injury. Our advocacy team also help individuals seeking information about their legal rights, insurance coverage, and financial assistance programs. People and their carers are empowered when they have good understanding of the legal and financial aspects of their situation and whether they are eligible for compensation or disability benefits, like the NDIS.
Ageing support for people and carers
Providing help to understand the risk of brain injury as someone ages is important as degenerative conditions (like Alzheimer’s and Dementia) are some of the leading causes of a brain injury. Access to My Aged Care, finding local services and support groups, as well as tailored information about how brain injury can impact you as you age – are all part of why so many Australians are calling Synapse for support.
Peer support & access to a network
A network is so important to give individuals people to talk to that understand what they’re going through. Information on local support groups, counseling services and respite care for carers. People are often looking to find information on where to access these services and how to connect with local groups. Understanding the support available can significantly impact someone’s quality of life and emotional wellbeing.
Synapse offers support coordination to help people manage their NDIS plan and supports. It can be critical to keep people on track for achieving their goals or returning to work and reintegrating back into society in a way that’s important to them. Choice and control are fundamental to ensuring the right approach is taken to managing someone’s supports. Our team are passionate and committed to ensuring this is the experience of everyone we work with.
Other areas where people need support
Key areas of concern for people was housing and training around brain injury. Housing is a key factor, as many people may be unable to afford their rent or mortgage after a brain injury and this can lead some people to homelessness or be in need of community housing. Synapse does provide housing options catered to people living with brain injury in Queensland’s Southeast and Aboriginal and Torres Straight Islanders living with brain injury and disability in Cairns. Training is also essential for organisations and businesses to learn more about how to recognise and work with someone who may be living with a diagnosed or un-diagnosed brain injury.