1 in 45 Aussies are diagnosed with a brain injury…How many are missed?

Imagine you’re at a wedding party… 

There are people, the music is loud, the lights are dimmed just right.  

Laughter is all around you, and the couple’s first dance is about to begin. You’re surrounded by joy, celebration, and a group of people toasting to love. But somewhere in the room, maybe even beside you, someone is fighting a battle you can’t see. 

They smile politely. But beneath the surface, the noise is overwhelming. The flashing lights are sending warning signals to their brain. The crowd’s constant movement feels like standing in the middle of a storm. Their head pounds, and they can’t quite focus. They try to follow the conversation, catching fragments but never the full picture. Fatigue sets in fast, like a fog creeping over everything. They know it will take days to recover from the party.  

They’re doing everything they can to stay positive and be a part of the group. Other people around them are getting frustrated that they are withdrawing.   

This is the reality for many people living with a brain injury. Often invisible. Frequently misunderstood. And affecting them in ways that are easy to miss, but impossible to ignore. 

In a setting like a wedding that is filled with sensory overload, social expectation, and stimuli, a person with a brain injury may be pushed beyond their limits. But they won’t always tell you.  

Because they’re used to being told they look fine.  

Because explaining takes energy they don’t usually have.  

Because they fear judgment, exclusion, or disbelief. 

This experience is so common for many, sometimes they’re battling with a brain injury they don’t know they have, because brain injuries often go unidentified due to lack of understanding and screening, or misdiagnosed and confused with mental health issues.

Brain injuries don’t always come with physical signs. They can come with memory loss, sensory sensitivity, cognitive fatigue, anxiety, and a brain that just doesn’t process the world the same way anymore. The part that is difficult to explain, is that every brain injury is different and individual. 

This Brain Injury Awareness Week, we’re asking everyone, whether you’re at a wedding, in a workplace, classroom, or queue, to approach others with empathy and compassion. You never know who is struggling quietly. You never know who’s using every ounce of their strength just to be there. 

Small acts can make a world of difference.  

Change doesn’t start with policies alone, it starts with people. People who are willing to see beyond appearances. To understand that “invisible” doesn’t mean “not real.” To make spaces safer, kinder, and more accessible. 

Because while the celebration may last a few hours, the effects of a brain injury last a lifetime. 

Let’s make sure no one feels invisible in moments meant to bring people together. 

Interventions that can change the story

Brain injury can affect anyone, anytime and its impact on individuals, families, and communities is often misunderstood and underestimated. It crosses all ages, cultures, and regions across Australia.

To truly support people living with brain injury, we must invest in tailored, specialist services that meet their complex and diverse needs. These life-changing interventions include:

  • Meaningful community engagement and peer support

  • Safe and appropriate housing

  • Access to brain injury-aware aged care

  • Legal advice and advocacy

  • Support to find and keep employment

  • Inclusive workplaces with reasonable accommodations

 

Synapse’s contribution to the solution

At Synapse, we’re driving practical, evidence-informed solutions that respond to the real-world challenges faced by people living with brain injury – through research, direct support, training, advocacy, housing, and community connection.

  • Research: Building an evidence base around these issues to inform and prompt policy and system change, and developing important tools and initiatives to address some of the challenges, is at the heart of all the research we do.
  • The Synapse Info line – 1800 673 074: Our Information & Referral team provides specialist information and advice to help manage the impacts of brain injury and better navigate the systems of available care and support.
  • Housing: Housing is often a primary concern for people with a brain injury and their families – finding and managing an appropriate housing option can be complex.  Our experienced staff understand their experience and apply our specialist knowledge to assess their needs as they relate to housing and support.
  • Brain Injury Training: Our training has been designed to suit individuals from different industries and job roles such as lawyers, doctors, nurses, disability workers, occupational therapists or even case managers. We can design workshops and webinars customised for specific company needs. We also offer interactive self-paced online training. 
  • Advocacy: Our Advocacy team assists people with disability to make decisions that affect their lives and ensure that rights, interest and needs are upheld. Our accredited, specialist brain injury and disability Advocacy services are available at no charge.
  • Reconnections Support Groups: Our Reconnections support groups provide those living with a brain injury, or caring for someone, an opportunity to connect with other individuals and their families.
  • Community Living Initiative in Cairns: Synapse worked with the local community to develop the Cairns Community Living Initiative. Tenants first moved into the completed culturally safe housing in 2017 and Synapse provides an accompanying service delivering culturally safe support which increases tenant’s sense of autonomy, provides greater choice, and connects them to the things that are important to their identity and which hold meaning for them – creating a place of belonging.