Managing stress and the caring role
Caring for a family member with a brain injury is one of the most difficult challenges that can confront a family especially for those providing direct care.
Read moreIn the Intensive Care Unit (ICU), a registered nurse is always available and assigned to patients. Most hospitals should have a social worker available who can assist with information and coping with the hospital system.
It is very stressful for families when a loved one acquires traumatic brain injury, stroke or similar brain disorder. A period of shock or disbelief is common at first. Many report a sense of unreality and being on “automatic” so it is hard to take information in. It can help to write everything down.
Everyone reacts differently – you may feel despair and blame yourself while another family member may be very angry and looking to blame others. Try to be supportive of each other despite the different ways everyone will cope.
You can download a PDF version to print and use as required.
Predicting the level of recovery after a brain injury is difficult. Doctors are usually cautious about early prognosis. Family members and other visitors have the right to ask questions, express a point of view, and receive clear and timely information. Sometimes the answer may be “we don’t know” and this may be the only honest answer available. Patience and persistence are required in the search for information.
Understanding medical terminology can be difficult, especially during times of stress. However, it is better to ask questions than not understand what is happening. If hospital staff use words you don’t understand, ask them to explain it in a simpler way.
Some hospitals hold meetings with family members where you can ask questions. Write these down and record the answers. Examples include:
This is a very stressful and emotional time for family members. Look after your own emotional and physical health so that you can provide support for the patient and each other in the weeks ahead. A common reaction is the family feeling they should be at the hospital as much as possible but remember to go home regularly and recharge your batteries for the long haul.
Tips for self-care include:
Caring for a family member with a brain injury is one of the most difficult challenges that can confront a family especially for those providing direct care.
Read moreCarers need to maintain their health and wellbeing to be in the best frame of mind to care for another individual.
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